Thursday, October 27, 2011

Will you support Team Andrew's Allies for the Walk 'n Roll for Spina Bifida?

Spina Bifida is more common than muscular dystrophy, multiple sclerosis, and cystic fibrosis combined.

ANDREW LUMM-son of Rose Mary and David Lumm
Joy Giver;Curious; Outgoing; 12 surgeries under his belt by age 3
Seventeen weeks into her pregnancy with twins Rose was told that baby A had Chiari II Brain Malformation; Hydrocephalus; club feet and Spina Bifida.
This child is sooo much more than those labels!!!!
http://bit.ly/AndrewsAllies

Pretty please click the above link to Andrew's Allies Web Page for the Spina Bifida Walk-n-Roll and our family photo.Once you click that link you will see how to donate, volunteer or walk to support SBACFL. Even if you cannot be part of Andrew's team, please take the time to click the above link and learn more about Spina Bifida as this is Spina Awareness Month.

The name “WALK-N-ROLL” was selected because it embodies a sense of inclusiveness and invokes the sense of empowerment which the Spina Bifida Community embraces in all that it does. A belief in a better tomorrow is our vision and the steps taken in this walk represent steps on a path to realizing that dream.

Participants can choose between a one mile or half mile path. The walk begins at 9AM and will end by 11AM at Blue Jacket Park, (the Baldwin Park area) on Saturday, October 29th. The address is 2501 General Rees Ave., Orlando, FL. I promise this will be a wonderful day if you are able to attend. There will be great DJs, Costumers with a Cause, Star Wars Characters, Face Painting, snacks, goodie bags, wonderful give-aways, child friendly games and much, much more!!!

We need walkers for Andrew's team and virtual walkers, (people who support the team with a monetary donation but physically are not there.) If you plan to attend on Saturday, click http://bit.ly/AndrewsAllies; on the left, under Visitors, click Participant Registration if you plan to walk with us or ; click waiver-I agree; click Join a Team.....Andrew's Allies. If you want to volunteer, you would click under Visitors to Volunteer.

The Spina Bifida Association can do things to make Andrew’s world better. An organization can do more than one family alone can do to bring about change. The Spina Bifida Association has a presence in DC representing thousands of families like ours who go through so many things that just don't seem right. For example, our insurance does not cover disposable medical supplies so they don't help us with the 4 catheters we use a day....Andrew's wheelchair was not covered....etc, etc.

The Spina Bifida Association funds research which improves the lives of those living with Spina Bifida and provides a free on-line institute for seeing presentation by the Nation's best doctors without ever even having to leave the comfort of our home. Having a strong local chapter helps the entire world wide Spina Bifida Community.

Next, click the link below to see banners that have been created to promote Spina Bifida Awareness by a mother of a baby just born in February with SB. Each is beautiful photo of an individual living with Spina Bifida in Central FL. There are so many stories tied to each of these individuals....I know most of these families.
https://www.facebook.com/media/set/?set=a.10150855859365252.749924.231596215251&type=3

Lastly, know that the SBACFL Board members committed to each spray paint their hair if $50,000 was raised at this Walk. We made that commitment on October 3rd when we had 19,600. As of right now, $42,000 has been raised! A few members of the Board that you might know in addition to myself are Dr Herrera, Dr Lesher and Dr Swana to name just a few.

Any support will be appreciated. With gratitude,
Team Andrew's Allies-Rose Mary, Dave, Ryan, Andrew, Katelyn and ......??

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